ALPE support

ALPE Foundation provides many different services. Absolutely all of the services provided by the ALPE Foundation are free.

To begin with, if you have recently discovered that your child (whether the child is born or unborn) has a bone dysplasia, please call or write to us, and we will provide you psychological and emotional support. You can talk to our coordinator, Carmen Alonso, or to someone else from the Foundation; they will provide you with guidance and advice on how to start adapting to this new situation, and the first steps you can take to help your child and yourself.

WORKING WITH ORGANIZATIONS

Throughout the various stages of your child's life (or your own life, in the case of individuals with achondroplasia), we can, if you wish, coordinate information and monitoring between different relevant agents. This includes coordination between agents such as early intervention centres, schools in different levels of education, basic health services (paediatrician), medical experts, public administration, etc. We can act as an intermediary between various agencies. We also regularly organize lectures and facilitate specialized training for different professionals.

MONITORING BY HEALTH PROFESSIONALS

Attention, evaluation, and monitoring by our specialists is at your disposal. We have highly experienced professionals in achondroplasia who will assess you (or your child) when you come to Gijón, where our premises is located.

Within the Foundation we have the following professionals:

  • Paediatrician: Dr. Carlos León
  • Physiotherapist, Osteopath, and Hydrotherapy expert: Carmen Barreal
  • Speech therapist: Belén Ojeda

In addition, outside the ALPE centre, but also in Gijón (remember, all of these services are provided free of charge) we have access to the following professionals:

  • Orthodontist: Dr. Guillermo Ibaseta
  • Audiologist: Dr.Begoña Bascarán
  • Otorhinolaryngologist: Dr. Patricia Aldama
  • Stomatologist and Kinesiologist: Dr. Amelia de la Ballina

Further, we have access to other professionals in some cities outside of Gijón:

  • Clinical Psychology Service of the UNED (Spanish University of Distance Education)
  • Podiatry and Sports Medicine: Dr. Miguel Fuentes, in Madrid
  • Acupressure in the Centro de Encuentro con el Bienestar, in Madrid

Finally, through telephone or the internet we have access to the following professionals:

  • Dietitian-nutritionist: Nuntia Nutrition Guidance Cabinet
  • InPsique, on-line psychological care service

SOCIAL RELATIONSHIPS

Another very important aspect of the work of the ALPE Foundation is the creation of networks. We create opportunities for you to meet other people who share this condition; such networks will be important in your life and will help you feel accompanied, understood, and surrounded by warmth. For the child, it is fundamentally important to be in contact with other children with whom he or she can identify (it is so rare to know others with this very different condition).

PROMOTION OF SCIENTIFIC RESEARCH

We promote scientific and humanistic research. We are in contact with the main researchers in the field; we keep updated with the state of the research field and inform you of the main lines of scientific research in achondroplasia. One of the most important areas of collaboration is social psychology, which has firmly established the significance of the so-called stigma (a feature of a person that which makes this person subject to social exclusion in a certain place or time,) in the discussions with diverse social agents, such as the media. We ensure that we communicate with the various social agents, to try and make them aware of the condition and the associated stigma.

SOCIAL IMAGE AND THE MEDIA

One of our most important fields of action is the social diffusion of an inclusive image of the normality of people with dwarfism. "Achondroplasia without clichés" (Fundación ALPE, 2014) is the motto that gives title to an ongoing campaign that focuses our efforts in relation to the social image of achondroplasia, and its treatment in the media.