Therachon´s Observational study open for recruitment

TA46-002 is the Observational Study Investigating Clinical & Anthropometric Characteristics of Children With Achondroplasia

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Phase 1 data for TransCon CNP

Ascendis Pharma presented on the 28th November 2018,
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New data on Vosorite for achondroplasia

BioMarin Research & Development day 2018, was presented 

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4th Conference on European Reference Networks - ERNs in action

This ERNs conference

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ALPE at BioMarin European Patient Advocacy Forum 2018

On the 17th November 2018, Carmen Alonso represented ALPE

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ALPE Foundation at the European Union

At the end of September 2018 a large representation of the ALPE Foundation

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Highlights of the World Orphan Drug Congress - WODC 2018

The WODC Europe 2018 was held in Barcelona, on the 6th to the 8th Novembre,

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How can a congress have a soul?

Because those who organize it and those who participate in it do not fear feelings.

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Ongoing research on achondroplasia

There is currently no cure or pharmacological treatment available for achondroplasia. Current care for achondroplasia manages the symptoms

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